So called ‘rare diseases’ collectively affect one in 17 individuals. More than half of those with a rare condition are affected in childhood and 80% have a genetic cause. If, as a social worker working with children and their families, you haven’t yet come across a genetic condition of relevance to your case it is only a matter of time. Genetic testing has increased exponentially and is now carried out in multiple medical specialties outside of genetics. Social workers need to understand how these changes are already impacting children in care and their families and consider the potential implications of future government plans to further expand genetic testing.
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